Trusted Resources: Education

Scientific literature and patient education texts

Guardianship/Conservatorship: Protecting Your Adult Child With MPS or ML

key information

source: National MPS Society

year: N/A


Parenting requires caring for and protecting children. This care begins at birth and continues for many years. For parents with a child who has MPS or ML, this care often extends past the age of maturity, which is 18 in most states, but 19 or 21 in some. The law states that the child is an adult, and as a parent you are no longer allowed to care for their money, gain access to health information, or even make necessary medical decisions. Once your child is considered an adult, but is not able to make decisions, you may consider guardianship and conservatorship.

In some states, a court appointed legal guardian of an adult automatically has the power of a conservator. In other states, it is necessary to get two appointments from the court system, one for guardianship and the other for conservatorship. Guardianship and Conservatorship are the legal rights given to another person to protect and manage the personal care, finances, or both, of another person. The person needing the help is called the ward, conservatee, or protected person, and the person providing the help is called the guardian and or conservator.


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