Trusted Resources: News & Meetings

Latest announcements and gatherings

8 resources available:

Full Letter From Takeda to the National MPS Society

Source: mpssociety.org
May 11, 2022

Europe Grants Orphan Drug Status to JR-441, ERT for Sanfilippo A

Source: sanfilipponews.com
Jan 27, 2022

Gene Therapy for Sanfilippo: Where We Are Now

Source: sanfilipponews.com
Feb 16, 2021
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7 resources available:

A 22 Year Old Rotherham Man, no Longer Walk Up His Stairs

Source: www.examinerlive.co.uk
Feb 24, 2022

York Hob Moor Oaks School Boy Battles Hunter Syndrome

Source: www.yorkpress.co.uk
Feb 14, 2022

Announcing Tracy Kirby, Director of Development

Source: mpssociety.org
Jan 4, 2022
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2 resources available:

36th Annual Family Conference: Nashville, TN

Source: mpssociety.org
Aug 4, 2022

H4B Boston’s Living Rooms of Rare

Source: globalgenes.org
Mar 3, 2022
4 resources available:

Fall Family Fundraising

Source: ml4.org
Oct 15, 2022

Believe in G Golf Tournament

Source: curesanfilippofoundation.org
May 20, 2022

Oliver’s Tomorrow Night at Columbus Blue Jackets

Source: curesanfilippofoundation.org
Apr 22, 2022

Raleigh Run for Rare

Source: mpssociety.org
Mar 26, 2022