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Glenn O' Neill
Cure Sanfilippo Foundation
P.O. Box 6901
Columbia, South Carolina, United States
Since its creation, the Foundation has grown to include more than 90 families of children with Sanfilippo syndrome. This team approach has raised more than $10 million and generated assets of more than $15 million to support the mission and helped fund more than 20 grants around the world so far.
Glenn has spoken in various forums and conferences including NORD (National Organization of Rare Disorders), Rare Genomics Institute, PRIMR Advancing Ethical Research, Sanofi Genzyme, GoFundMe Headquarters, Molina Healthcare, and others. Glenn was the 2017 Sanofi Genzyme Torch Award winner and received the 2017 GoFundMe Trailblazer award. For their work rare disease, Glenn and Cara were awarded the Portraits of Courage Honor by NORD in 2015, as well as being a Tribute to Champions of Hope finalist for Global Genes. In 2017, they received the South Carolina Child Advocate Award from the SC American Academy of Pediatrics.
Schizophreniform Presentation and Abrupt Neurologic Decline in a Patient With Late-Onset Mucopolysaccharidosis Type ...Due to their low frequency and some atyp...
A Multicenter Open-Label Extension Study of Intrathecal Heparan-N-Sulfatase in Patients With Sanfilippo Syndrome Typ...Sanfilippo syndrome type A (mucopolysacc...
Feeding Tips for Children With Sanfilippo SyndromeDisabilities due to Sanfilippo syndrome ...
Mucopolysaccharidosis III: Molecular Basis and TreatmentMucopolysaccharidoses (MPSs) are known a...
Developing a Treatment Plan for Sanfilippo SyndromeSanfilippo syndrome is a neurodegenerati...
Oliver’s Tomorrow Night at Columbus Blue JacketsThe NHL’s Columbus Blue Jackets are de...
Mucopolysaccharidosis Type III – Sanfilippo SyndromeMucopolysaccharidosis type III (MPS III)...