Trusted Resources: People & Places
Online groups, photo galleries and blogs
Children with rare diseases are racing the clock from the moment they’re born. Imagine hearing the news as a parent that your child has a disease that will end their life in only a few short years. Now imagine being told little research for the disease exists because it wouldn’t generate enough profit for a drug company to pursue. It’s a literal race against time for your child, and disease has a huge head start. How do you get your child out of what seems a hopeless situation in a world where no one is even looking for a cure?
The Ryan Foundation exists to find, then fund researchers with novel science that can lead to actual treatment of Rare Disease; with a specific emphasis on Mucopolysaccharidosis (MPS) and other Lysosomal Storage Disease (LSD). The Ryan Foundation works hand-in-hand with National and State legislators to build a stronger partnership between government, research science, and the individuals and families living life with MPS and all Rare Disease. The goal of the Ryan Foundation is to secure a better future for both the families living with the pain of Rare Diseases today as well as tomorrow’s generations.
Related Content
-
Stewart RustDr Rust completed his first degree at Le...
-
Journey Assistance ProgramProgram offers assistance grants to help...
-
Morquio B.ComWe have created this website to bring pe...
-
Evidence of Treatment Benefits in Patients With Mucopolysaccharidosis Type I-Hurler in Long-Term Follow-Up Using a N...We developed a brain and spine magnetic ...
-
Ultrasound Findings of Finger, Wrist and Knee Joints in Mucopolysaccharidosis Type IMusculoskeletal findings in MPS can prog...
-
Mucopolysaccharidosis Type 1 (MPS 1)What is Mucopolysaccharidosis Type 1?Muc...
-
A 22 Year Old Rotherham Man, no Longer Walk Up His StairsA Yorkshire community has launched a fun...