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Team Sanfilippo Foundation

20 Lakewood Avenue
Ronkonkoma, New York, United States
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Team Sanfilippo Foundation is a nonprofit medical research foundation founded in 2008 by parents of children with Sanfilippo Syndrome. Our mission is to fund potential therapies that can be in clinical trials in the near future. We support Biotech, pharmecutical and research centers with potential therapies that are underfunded and provide assistance with connecting families to companies that need information for ongoing clinical work.

Team Sanfilippo is dedicated to provide assistance to families to gain access to clinical trials, treatments and compassionate use. We help coordinate necessary genetic testing required for families to participate in clinical trials or treatments. We are dedicated towards getting children of all ages access to clinical trials and treatments and assistance to families enrolled in clinical trials.

This foundation has been formed to receive and distribute funds for scientific and educational purposes within the meaning of 501(c)(3) of the Internal Revenue Code. Team Sanfilippo has developed a strategic plan to achieve our mission. Due to recent scientific advancements in the areas of enzyme replacement, gene therapy, and small molecules which has led to the initiation of clinical programs for Sanfilippo and other lysosomal storage diseases we will be focusing on the development of combined therapies to give children the best possible treatment strategies.