The ML4 Foundation is a U.S. 501 (c)(3) nonprofit charitable organization. The ML4 Foundation, originally known as CHARM (Children’s Association for Research on Mucolipidosis), was founded in 1982 by Ron and Lynn Goldblatt, their parents, Roz and Joe Zakutinsky, other family members, and close friends. The organization was started to promote research as well as to reach out to other families affected by this debilitating disease.

In 1984, with the diagnosis of their daughter Lauren, Dr. Jordan Glaser and Randy Yudenfriend Glaser joined CHARM. Shortly thereafter the name of the organization was changed to the Mucolipidosis Type IV (ML4) Foundation. Randy was elected President and served for over 20 years, until January 2009. From 2009 until August of 2013, Paul Tanenholz served as President. Randy Gold is the current board president, serving from 2013 until today.