Terri L. Klein is the President and CEO of National MPS Society. Terri joined the Society as Director of Development in March 2009 and has served as President and CEO since January 2018. Under her leadership, membership of the Society has increased by over 310% in the last three years, and now provides services to over 2,000 households nationwide. In collaboration with her Board of Directors, Terri leads a team that provides crucial patient programs, including research and family support. Her key focus areas include diseases with no treatment, clinical application of bench and translational research, key stakeholder engagement, newborn screening, patient secured data, access to therapies, and advocacy at the state and federal level.

In addition to her role with the Society, Terri also co-chairs the International MPS Network (IMPSN), and COPA, part of the Lysosomal Disease Network. She is a member of the North Carolina Rare Disease Coalition and mentors’ other foundations that strengthen patient communities. Terri is also a founding member of the Mucolipidosis Research Collaborative Network. 

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