Trusted Resources: People & Places
Online groups, photo galleries and blogs
National MPS Society
1007 Slater Rd #220
P.O. Box 14686
Durham, North Carolina, United States
Steve Holland, CPA is the proud father of Spencer, Madison, and Laynie, who were diagnosed with attenuated MPS I in 1994. The Hollands live in Texas, where they host a successful MPS fundraiser annually. Steve has served on the Society’s board since 1998, formerly serving as Chairman and Treasurer and currently serving as Vice-Chairman. He chairs the Education/Publicity Committee and the pathways Committee and is a frequent speaker on MPS and rare disease topics.
Spectrum of MPS 1 H/S Diseasehttps://www.onempsvoice.com/wp-content/u...
Experimental MPS 1 Therapy Shows Biomarker Activity, Improved FunctionREGENXBIO presented results from its ong...
36th Annual Family Conference: Nashville, TNSave the date for our 36th Annual Family...
Macular Changes in a Mucopolysaccharidosis Type I Patient With Earlier Systemic TherapiesTo describe retinal findings in a patien...
The MPS I-H Diagnostic Journeyhttps://www.youtube.com/watch?v=jSq5tQD4...
Mucopolysaccharide Storage Disease Type I: Hurler, Hurler-Scheie, and Scheie Syndromeshttps://www.youtube.com/watch?v=en9M2P8S...
EMA Grants Orphan Drug Designation to JR-171 for the Treatment of Mucopolysaccaridosis Type I (MPS I)JCR Pharmaceuticals Co., Ltd. announced ...