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402 Park Avenue
Belleville, Illinois, United States
Jackie is the mother of Anna who has Mucolipidosis III alpha/beta. Jackie began her journey into advocating for rare disease in 2012 when she joined the board of ISMRD. In 2015, Jackie stepped up as the board President of ISMRD and spent several years working with the board advocating for Mucolipidosis and several other rare diseases.
Jackie has spent the last 14 years managing her family business and brings her business skills to the table to work with the board and accomplish the mission and vision that defines Cure Mucolipidosis. She is very much looking forward to seeing the science and research develop and ultimately see a cure/treatment for Mucolipidosis.
MPS 1: Where Are We NowDr. Sandra Kingma from the Centre for Ra...
[Pharmacological Property, Mechanism of Action and Clinical Study Results of Pabinafusp Alfa (Genetical Recombinatio...Mucopolysaccharidosis type II (MPS II) i...
CHOC-Harbor UCLA MPS Multidisciplinary CenterCHOC and Harbor-UCLA Pediatrics together...
Clinical Utility of Elosulfase Alfa in the Treatment of Morquio A SyndromeMucopolysaccharidosis type IVA (MPS IVA ...
Burden of Morbidity After Allogeneic Blood or Marrow Transplantation for Inborn Errors of Metabolism: A BMT Survivor...Survival after blood or marrow transplan...
Mucopolysaccharidosis Conditions Explainedhttps://www.youtube.com/watch?v=EmSJ_hGE...
Gene Therapy May Reverse Hurler Syndrome, a Rare and Severe Illness in KidsGene therapy might soon offer a new opti...