DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.message sent
email sent successfully
rareLife solutions 606 Post Road East #397 Westport, CT 06880 |
||
You are receiving this because you have an account on www.oneMPSvoice.com | ||
To unsubscribe from these emails, click here |
Trusted Resources: Community Center
Extraordinary Experiences Program
Program provides grants of up to $1000 to individuals diagnosed with MPS and ML who are 13 years of age and older, and their families.
Services Provided:
• Financial Assistance
• Educational/Recreational/Exercise/Therapeutic Programs
Eligibility Guidelines:
• Live in service area
• Meet program’s eligibility criteria
• Meet program’s medical criteria
• Meet program’s age criteria

Related Content
-
educationBone Biomarkers in MucopolysaccharidosesThe accumulation of glycosaminoglycans (...
-
educationMolecular Analysis of Vietnamese Patients With Mucopolysaccharidosis Type IMucopolysaccharidosis type I (MPS I) is ...
-
news & meetingsLosing Stanley – My Little Boy Doesn’t Recognise Me AnymoreLittle Stanley Barnes was diagnosed with...
-
people & placesCure MucolipidosisCure Mucolipidosis is a non-profit organ...
-
news & meetingsFall Family FundraisingLast year, we initiated our annual Fall ...
-
news & meetingsYork Hob Moor Oaks School Boy Battles Hunter SyndromeThe family of a nine-year-old York boy a...
-
news & meetingsRaleigh Run for RareThe National MPS Society will host a tim...
send a message
Reset password
password changed successfully!

please log in with your email address and new password.
your activation key expired
this confirmation key has expired. please try to log in again or resend confirmation email.
confirmation email sent

a confirmation email has been sent to your inbox. click the link in the email to activate your account.
can't find the email? be sure to check your spam folder.
password reset email sent

an email has been sent to you with a link to reset your password.
can't find the email? be sure to check your spam folder.

If you are a doctor or other qualified health care professional, you should not offer any medical advice or treatment on our Sites, nor should you allow the content of our Sites to substitute for your own medical judgment. Please thoroughly review the information provided on our Sites before deciding whether any of the products, services, or treatments therein are right for you or others.
your account is now activated!

Log in
You need to log in to use this feature.
you haven't confirmed your email address yet. resend confirmation email