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      Emily Wants to Show Other Caregivers the Importance of Taking Care of Yourself


      People often make admiring comments to caregivers of special needs children or adults, saying things like, “I don’t know how you do it,” or, “You are so strong, you are super human!”

      Even though these compliments are well-intentioned they highlight one of the huge challenges of being a caregiver — sometimes you don’t feel strong and you don’t feel like you can handle everything. Sometimes you feel like falling apart.

       

      Source: https://www.allstripes.com/blog/shining-a-light-on-how-rare-disease-caregivers-cope
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      The symptoms of Mucopolysaccharidosis and the treatments that are available vary depending on which type of Mucopolysaccharidosis a patient has been diagnosed with. Select which type you want to learn more about, and can highlight the resources that are most relevant to your MPS/ML type.


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