We connect, educate, and empower the mucopolysaccharidosis community of care. Welcome!

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Resources for you

Social Wall

Trusted Resources

Find trusted information about MPS, including articles, videos, & treatment centers

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Clinical Trial Education

Learn more about the clinical trial process and search for trials that may meet your needs

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Diagnosis Educator

Information about the challenges & processes of getting and giving a diagnosis

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Additional resources

To help you as a patient or caregiver, oneMPSvoice also offers valuable tools throughout your healthcare journey.


As you discover new and valuable resources on oneMPSvoice, you can easily bookmark items and, if desired, share them with doctors, caregivers, and advocates in a private, secure way.

Upcoming Events

Around the world, the mucopolysaccharidosis community is making progress every day toward improving the lives of patients. Keep track of upcoming events of interest here.

Polls & Questionnaires

Do you know how your healthcare journey compares to others in the community? Keep your finger on the pulse of what others are experiencing through our ongoing polls and surveys.


It takes a lot of work to keep up with what's new in the mucopolysaccharidosis research and treatment world. Each time you visit oneMPSvoice, we'll notify you on what's new.